This request is a collaboration with Betsy Ladyzhets of MuckRock’s Documenting COVID-19 project.
National Institutes of Health’s RECOVER Initiative is a congressionally-funded research project “to understand how people recover from a COVID infection, and why some people do not fully recover and develop Long COVID or PASC (post-acute sequelae of SARS-CoV-2).”
One of the initiative’s core components is its “Adult Study Protocol,” which aims to enroll more than 17,000 people over the course of four years and which involves the use of an extensive “Adult Survey Question Library.” This spreadsheet contains a list of those questions, which cover Long COVID symptoms, COVID treatment history, vaccine status, comorbidities, demographic information, and more.
Our FOIA request 📄 seeks all database records collected through that questionnaire, plus all relevant database documentation. Disclosing these records to the public, rather than only to a select group of researchers, could greatly improve public understanding about Long COVID / PASC. It could also help shed light on the progress of the RECOVER Initiative, for which Congress has allocated $1.15 billion in funding.